Looking for Parents with PKU diagnosed children.

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  • October 29, 2009 at 10:58 am #5853
    pumbainga
    Member

    Hello Girls/Dads,
    I have a friend who’s baby have this condition. She needs to get as many information from other parents as she can. I know there is louds of booklets and written information, but she needs to speak with real people and to see and hear real situation.
    I would be very happy if any one would be able to share their storry of their everyday life with PKU child . This would help my friend easier come to terms with diagnosis and future which comes with it.

    Thank You All in advance !

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